California Dreamin’ is what we had in mind moving from the East Coast for Rich’s job as a Scientist, starting a new life together and enjoying the sun and beaches. Life was going great, Adelaide had more activities than she could ever imagine trying and then we added a beautiful baby girl, Daphne to the family. However, just days shy of Daphne’s 1st Birthday we were given devastating news from an MRI thinking that was the worst but then a couple weeks after her birthday we learned that she had Leukoencephalopathy with Thalamus and Brainstem Involvement with High Lactate, a Mitochondrial Disease that has no cure, no treatment, is progressive and fatal. Now we are just enjoying each day and taking them one day at a time with our crazy busy girls.
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Life is RADD 