It was just one year ago today that I took this picture on a very early morning waiting for Daphne to get her first MRI.
She was just days shy of her 1st Birthday. 1st Birthday’s are a big deal to parents, or at least to me. It’s a milestone that says YES we survived the first year and it’s the time you start seeing the most change in your little one. So it was incredibly sad for us to sit there about to put our child through what most people never experience in their life, all in hopes for answers.
Little did we know at that time the answer we were about to get was not what we were hoping or wanting, in fact it was the worst of the worst in my opinion.
I sit here now again, with the same timeframe, just days shy of her 2nd Birthday needing to write the how we got to this point story, which I told myself needed to happen on the anniversary of receiving her diagnosis so I have a few more days. I think I am finally ready. I know I will shed many tears in writing it but know there will be some peace and healing with it as well because that’s how it is done right?
I am glad this day a year later is different and most importantly I am glad how far we have come and that we still have our sweet baby!