This is very important to me and if you are a parent it should be very important to you as well.
There is a little boy in the UK with a rare Mitochondrial Disease that is being denied treatment by the government and the hospital that is caring for him.
The hospital is stripping the parents of their parental rights for this baby.
He was supposed to have his ventilator turned off last night at Midnight to die, but the parents have an appeal in with the Supreme Court who will make a ruling June 8, 2017, this is their last option.
The parents have raised the over 1 million pounds needed to transport him to the US to a doctor that is willing to try a life saving drug on him that has worked for other children.
There is a US Facebook Group where you can follow along called Charlies Army USA.
There is also www.charliesfight.org
Charlies mums facebook page is public: Connie Yates
ITV London documented the parents fighting for their son you can watch the video here Charlies Fight
There are several petitions to sign, they do help so do it:
I would not lead you all down the wrong path, I promise. Please take a few moments to sign the petitions and follow the facebook groups.
This issue and disease hits home. I would have to die before I would let anyone tell me how they were going to care for my child let alone tell me they were going to kill her!
If you have any questions let me know and I can get them answered.
xoxo Desiree
Life is RADD 