Little Miss Daphne Poo has been loving her new found skill that we call “Take a Step”
Now mama needs a back brace and Daphne needs a harness because weighing in at only 21lbs the girl is heavy, just pure dead weight.
I know your probably laughing saying really, but I tell ya, YES!
I know she will not get easier and only heavier (fingers crossed) so I had to push myself to start working out again to handle this little sack of potatoes.
Not really, but I have always wanted to say that and this is probably as close as I will get, but it is after almost a year of therapy.
Miss Daphne Poo is doing really well with unsupported sitting.
Rich was able to capture it on video today
One Whole Minute!
The little things for me are being able to sit her on her changing pad while getting dressed and button the back of her shirt or comb the back of her hair, it’s really just great!
So as I have mentioned before Daphne had a regression in April of 2016.
What that means is, it is a form of brain damage.
It is unknown if the skills lost will be regained or get worse.
For Daphne she lost the ability to use her hands, she could not even open them, they were in clinched fists all the time, unless she was sleeping or completely relaxed then they would open slightly, also her arms and legs became very stiff and she also lost the ability to rollover.
She was about 10 1/2 months old and this was so hard for us to see. We continued therapy, working with her and at this point in her life she really loved massages all over her body to help with I think sore muscles.
So now that most of her skills have been regained but glimpses of the regression still exist and she is definitely much weaker in those areas which were already her weakest areas, any little inchstone makes us all so happy and we cheer “Yay Daphne, good job” she gets so excited and is so proud of herself, she has this little grunt/laugh that she does when she has accomplished something.
Earlier this week she had a dentist appointment and we did not have any oatmeal made so she and Rich were going to have a breakfast date at our local breakfast spot but while getting ready to leave I tried one of Adelaide’s pouches of applesauce.
Note, neither one of my kids liked purées or mashed potatoes as toddlers (guess it was a texture thing) and Adelaide did not like applesauce or oatmeal for years, probably not until she was in elementary school, so this was super cute to see little miss poo poo eat from a pouch and hold it all on her own.
Since Daphne cannot hit “age appropriate” milestones.
I decided to help her do something that most 13 months cannot do.
Drink from a STRAW!
She has not liked a normal sippy cup, except to chew on it and let the water run down her chin.
She has always loved drinking from a cup but the art of slowly pouring in the right amount of water to not gag her or not spilling it down her chest, well it’s great for sitting poolside on a hot day but not practical for everyday (yet).
I have talked to her OT about options and techniques, aside from siphoning water with a straw into her mouth like I had been doing and she loves it but I really wanted her to drink from a cup. The OT suggested a little top to add to a water bottle and squeeze to help her learn but it leaked more water from the edges then what came out of the straw.
Then I found this article on Pinterest…..yes I love Pinterest and it’s my go to for just about anything.
I bought most of the cups in the article and others I found on her website.
I thought the first cup here was the best because I could use it without the internal straw and it did not spill much and Daphne loved it. I sent it to the sitters and showed her how to work on it with her.
Today I tried one of the other cups here which the blogger and the description of the cup said it has a magical suction when the lid is on that helps the liquid go up the straw faster. My oh my were they right.
My little bugga can drink from a cup!
She does not have to lean back or have it tilted, she can drink it just like a normal kid. Take that “age appropriate” milestones.
This is 13 months!!
**of course I tried to capture it on video but she just laughed at us. Little Stinker!